Disabled Community Megathread from November 3rd, 2025 to November 16, 2025
You deserve to be acknowledged, taken care of, held, and loved in abundance.
Friendly reminder to please use
::: spoiler spoiler tags and content warnings [cw]
Hexbear CoC
:::
for sensitive content that falls under Hexbear's Code of Conduct.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Keld [he/him, any] - 1mon
Eating yummy broccoli. No one at the food bank wanted their broccoli so I got 7 heads of broccoli.
People at the food bank are such picky eaters I swear.
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gingerbrat [she/her] - 1mon
Broccoli is so good!!
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Keld [he/him, any] - 1mon
It is so good, and there's basically no way to do it wrong. You can bake it, you can sauté it, you can steam it, you can boil it, it's all gonna come out nice and delicious.
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gingerbrat [she/her] - 1mon
You can even make soup out of it, and it tastes so delicious
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un_mask_me [any] - 1mon
Nice haul, broccoli is probably 30% of my diet and makes any meal better
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DisabledAceSocialist [comrade/them] - 1mon
I love broccoli but more than a handful and I get gastric disturbances.
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gingerbrat [she/her] - 1mon
Oh no :(
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un_mask_me [any] - 1mon
A handful is usually all you need! I don't normally eat broccoli raw, but when I do I definitely notice a difference. Same with cauliflower; but when I cook it first it doesn't mess with my stomach as much. I think it removes some of the things that can cause distress, if I'm remembering correctly. A lot of that depends on the individual, though. Sometimes our bodies just don't like what we try to feed them, especially when meds and illnesses come into play.
2
DisabledAceSocialist [comrade/them] - 1mon
The problem is I've been diagnosed with a folate deficiency and the folic acid supplements aggravate my bladder terribly. I thought I would get extra folate by eating extra veg but the gastric symptoms it gives me are too bad. My tingling and pins and needles are getting worse and I'm really scared about it because it seems there's nothing i can do, and the GP is so useless, she just tells me to take the folic acid anyway.
3
un_mask_me [any] - 1mon
Oh I wasn't suggesting that you should try it that way, I guess I was just over-sharing, sorry. I'm sorry the pins and needles are getting worse and that your GP isn't helping at all. You'd think they'd have a shot or something they could give you that wouldn't mess with your stomach. I hope you can get some proper care soon.
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DisabledAceSocialist [comrade/them] - 1mon
I'm resigned to the fact that I'll never get proper care.
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un_mask_me [any] - 1mon
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gingerbrat [she/her] - 1mon
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gingerbrat [she/her] - 1mon
Could it be that the folate is doing something to the fibroids? And out of curiosity (don't answer if you don't want to share) what type of disturbances do you experience?
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DisabledAceSocialist [comrade/them] - 1mon
I've had IBS for ages, although it was quite recent that I realised that a lot of vegetables were aggravating it. Wind and loose stools being the main symptoms of that, and caused by many different veggies. And the veggies that don't trigger the IBS trigger migraines and bladder irritation. The only ones I can eat without any bother are potatoes, carrots and spinach, although apparently spinach can cause kidney stones so I'm hesitant to eat it more than twice a week. It's just an awful way to live, I would love to be vegan and eat lots of vegetables, I wanted to do Dr Joel Fuhrman's Eat to Live diet but it's out of the question.
I don't think the folate is doing anything to the fibroids, according to google, unmetabolised folic acid gets into your bladder and irritates it, so that's probably the issue with that.
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gingerbrat [she/her] - 1mon
This is so horrible, especially with the veggies that you want to eat
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Keld [he/him, any] - 1mon
Well except desserts.
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gingerbrat [she/her] - 1mon
Ever since my surgery, I've been trying to fit in regular workouts, and if not that, at least half an hour of walking through the woods to keep myself fitter than before. Now, half a year later, I still have issues with my surgical scar and due to depression and basically being sick for an entire month, I've not only lost all of my stamina, but also gained almost all my weight back. I feel constantly exhausted and tired, but I still keep on walking and running. At some point, it just has to get better. Even if it takes a year.
I'm too lazy to give up now, but I'm frustrated with how sad my life is atm, and how my body is one of the two major reasons for it. I can't believe I managed to organize 380 people for an entire week with 24 hours of sleep only three years ago, and now I get a headache when I sleep less than 9 hours. It's a constant uphill battle, but I simply refuse to give up, even when nothing seems to indicate it's gonna get better.
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Keld [he/him, any] - 1mon
You're gonna do great. You're working hard at it. If you can't make it get better, it couldn't have gotten better.
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gingerbrat [she/her] - 1mon
It feels so in vain most of the time, as if me trying to get better is just a Sisyphus task. I thank you for your kind words, sweetie, I needed them a lot
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Veggie_Deluxe [any, comrade/them] - 1mon
You are doing good work keeping at it. I need to get some of that spirit into my life rn, i am losing steam bad (in an overall life sense). So even if it reads as empty, I am proud of you.
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gingerbrat [she/her] - 1mon
Thank you It just doesn't seem to get any easier, you know?
I am proud of you too. Your other comment suggests you are struggling a lot too, and I'm sorry it's this bad in your life as well. I wish I could help more fundamentally, but if you want to, I'll mentally take you along for a little walk
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DisabledAceSocialist [comrade/them] - 1mon
Sorry to hear this.
Maybe a different type of sport like swimming might help?
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gingerbrat [she/her] - 1mon
Not really an opportunity to go swimming here frequently, and it's very expensive too. It's not like I don't enjoy walking, but getting sick and still suffering from the surgery makes every type of sport hard. It's getting better though, it's just very hard and frustrating. Thank you for making the suggestion!
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DisabledAceSocialist [comrade/them] - 1mon
Being outside is good for mental health too, even if walking is difficult.
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gingerbrat [she/her] - 1mon
It is. Just looking at a forest and smelling the air sometimes is enough to clear your thoughts <3
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DisabledAceSocialist [comrade/them] - 1mon
Being able to walk around a bit now I've been walking down to the beach, it's just at the end of the road and so good to get out there again.
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gingerbrat [she/her] - 1mon
I'm so happy to hear that! It's been a while since you've been there, so I was hoping you could go there again.
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DisabledAceSocialist [comrade/them] - 1mon
Thank you.
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un_mask_me [any] - 1mon
It is frustrating, but I'm proud of you for keeping at it even when it feels heavy and impossible. Sometimes the most defiant thing we can do is keep pushing forward against the odds. Keeping active out of spite is just as effective as keeping active from necessity. :)
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gingerbrat [she/her] - 1mon
I shall stay active out of spiteful necessity from now on. This way, I'll keep going regardless haha
Thank you sweetie, I appreciate you <3
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TheSpectreOfGay [hy/hym, she/her] - 4w
i think anyone who yells at me ever should explode into a billion pieces
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gingerbrat [she/her] - 4w
Why do people keep yelling at you, don't they know it's a guaranteed explosive end for them?
I'm sorry you got yelled at, sweetie
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un_mask_me [any] - 4w
Eternal explosions on the ones who yell at you
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Keld [he/him, any] - 4w
If anything that's too mild.
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DragonBallZinn [he/him, they/them] - 4w
Neurotypicals: “You are autistic, this means you can sometimes say out-of-pocket, insensitive things because you cannot hope to know any better.”
Also neurotypicals: “Hey by the way! I will randomly make comments on your appearance, and how you remind me of this famous unattractive person you never asked for! I know you can’t help it, but I figured you need to be reminded of your insecurities. Just in case you forgot! Wait, why are you mad at me?”
Sure, and I’M the one who can’t understand social cues….and I’m taking this “advice” from people who never keep their unasked for opinions or commentary to themselves.
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Salah [ey/em] - 4w
Neurotypical people use their judgy comments more strategically (although accidents happen for anyone). They say them when they are insecure, feel threatened or for some other reason want to make someone else feel bad about themselves. This is also why they get more offended when a neurodivergent person says something that the NT person perceives as judgy. The NT person assumes that the ND person intentionally wants them to feel bad because they project their own behavioural reasoning onto others.
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gingerbrat [she/her] - 4w
To me, it always feels like what they're actually saying is "Don't tell the truth to someone, just be judgy when you talk about or to them." I share your anger, it's frustrating how insensitive some people are
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un_mask_me [any] - 4w
Feels like a lot of NTs make themselves feel better by punching down this way. Almost as if by othering those around them they gain a sense of power and control.
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mononoke @lemmy.sdf.org - 4w
COVID has made a real doomer out of me. As usual, the people taking it seriously now will be the ones to pick up the mess caused by the hubris of those who think they're built different, your "comrades" included. Silence = death.
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gingerbrat [she/her] - 4w
It's almost impossible to stay optimistic when you look at the state of covid treatment - generally speaking. It's becoming harder and harder to get new vaccination shots where I live, masks are getting more expensive, and even if you manage to get a mask and a shot, people will treat you like you're infectious when you walk into any place with a mask on. It's disturbing how quickly the covid denial swept through all branches of society.
Please don't give up hope yet, though I know it's hard, I'm sure there's some sort of silver lining at the end of the tunnel
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mononoke @lemmy.sdf.org - 4w
I feel compelled to push back wherever I see complacency about all of this madness, but I can feel it taking its toll. It was Sankara who said we don't get the luxury of being tired of explaining...but I am very, very tired.
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gingerbrat [she/her] - 4w
Maybe we shouldn't treat tiredness as a luxury. I mean, I get what Sankara was saying, but it's not like you can stay up on your feet forever. We all need breaks, so becoming and being tired is a foregone conclusion. Maybe what we need is shifts in explaining. You can't do it all on your own, you know?
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Angel [any] - 1mon
I used to get so angry when people falsely accused my text of being AI-generated, but at this point, I really don't care. It doesn't help that I use em dashes a good deal—nothing wrong with that!
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Aradino [they/them, comrade/them] - 1mon
I wish people would realise that ai writes like that because people already wrote like that
Em dashes are cool. I wish I knew how to use them; though I suppose I could just misuse them like I misuse semicolons
Exactly, LLMs are fed human data and give you the statistically most likely output based on that.
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Keld [he/him, any] - 1mon
::: spoiler only open if you're ok with a joke about the subject.
How you write is not only fine — it's none of their business.
:::
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gingerbrat [she/her] - 1mon
I don't understand how people think that the use of one textual sign could be indication for an AI text. I'm sorry people accused you of that. Em dashes are amazingly helpful for writing well structured texts and I'm happy to see someone uses them correctly! Most people don't (and AI doesn't either).
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robot_dog_with_gun [they/them] - 1mon
people don't care about that structuring when writing emails or text messages so it's a signifier of high-effort or formality and they're harder to type unless you have the automatic override on double hyphens.
if someone is using emdashes outside of a textbook or institutional report it's unusual and most people (including me) aren't writing enthusiasts to pick up on weird grammar or style besides the obvious punctuation mark they usually don't use.
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gingerbrat [she/her] - 1mon
Using one in an email is strange enough, I agree, but it does get used in creative literature too.
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mononoke @lemmy.sdf.org - 1mon
I am also a big fan of the em dash as one of those dreadful book-readers. Don't let them shame you out of something that was around before they knew what words were.
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DisabledAceSocialist [comrade/them] - 4w
It's great being able to get out and go to shops and things again, but nobody is wearing masks and multiple people literally cough and splutter all over me. They don't even turn their heads away or cover their mouths. Just disgusting.
Oh and I have a lovely new thing to worry about. I've always heard that if i win my benefits case they will check the previous 6 months of my bank accounts. But now I've seen threads from disabled people on other sites saying they checked their accounts right from the start of the claim! The disability charity Scope told me it's OK that some people put money in my paypal account because they said it's a gift, but I'm not so sure, it might look suspicious, from multiple random people.
It's infuriating that so many people think living on disability benefits is the easy choice. Constant assessments, having your payments stopped for no reason, having to beg for food, bank checks and constant worry you'll be told you've done something wrong. Not to mention the endless threats from the government to make it more difficult to claim and to lower payments. What a way to live. All for the crime of getting too sick to work.
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un_mask_me [any] - 4w
People have learned nothing from the pandemic, and kind of seemed to have regressed in caring at all about illness. It's good to be able to get out of the house, though, even when it can cause anxiety with other people thrown into the mix.
I hope the payments aren't used against you for your benefit appeal. It's ludicrous to enforce such awful circumstances on the disabled for the sake of capital. What are you supposed to do when they don't even provide you with the means to eat while this appeal process is in motion? Just ludicrous. I hope you get the benefits soon and this unnecessary stress is put behind you quickly.
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DisabledAceSocialist [comrade/them] - 4w
Thanks. I think they just hope we die or kill ourselves. I don't know why they don't just legalise assisted suicide at this point.
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DisabledAceSocialist [comrade/them] - 4w
Had my vitamin D injection just now. Now I'm on tenterhooks to see if it's going to make me ill like the tablets do.
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gingerbrat [she/her] - 4w
I'm keeping my fingers crossed you don't get any side effects
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DisabledAceSocialist [comrade/them] - 4w
Thank you.
Apparently it can take weeks or months to notice anything from the injectable form so I guess I'll be worrying about it for a while.
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gingerbrat [she/her] - 4w
I'm going to stay optimistic and say I believe that you will get better
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DisabledAceSocialist [comrade/them] - 4w
Thank you.
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HexaSnoot [none/use name] - 4w
I didn't know vitamin D injections existed. Does this mean people at the north and south pole, and other dim snowy places, don't have to bathe like reptiles under a light for hours each day?
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DisabledAceSocialist [comrade/them] - 4w
I guess not.
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Veggie_Deluxe [any, comrade/them] - 4w
do you know how much vitamin d was in the injection? I am always very low on vitamin d and i wonder if that is something i could persue
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DisabledAceSocialist [comrade/them] - 4w
200,000 iu. It's meant to last from anywhere from 3 months to a year depending on your level of deficiency.
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Veggie_Deluxe [any, comrade/them] - 4w
Interesting, thank you. I am going to check and see if my doctor knows how i can get that done before the cold dark season really kicks in lol
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DisabledAceSocialist [comrade/them] - 4w
I think you can just buy them online too.
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un_mask_me [any] - 4w
Hopefully it helps and the side effects aren't noticeable. I'd say it's normal to be anxious about it after the reactions you had to the pill form. Fingers crossed this will alleviate some of the other things going on.
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DisabledAceSocialist [comrade/them] - 4w
Thank you.
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Wmill [they/them, fae/faer] - 1mon
Was cleaning the park yesterday for some exercise post Halloween and yeah almost fell on my butt, got into a swing of picking up wrappers when I had to go up a little pool. Used my hurt ankle to get up without thinking, had to switch feet and step up with my good one.
More time passes and that fall I had keeps coming back from time to time. Shit sucks I do hope my full mobility returns back to me, I wanna work a job that will probably have me going up and down ladders one day.
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gingerbrat [she/her] - 1mon
I hope you'll get our full mobility back soon. Do you have any exercises that can help with that? If not, I hope enough rest will do the trick for you.
Ladders are amazing tools, you should be able to climb them again
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Wmill [they/them, fae/faer] - 1mon
Ty I got some things I should be doing to help that I need to get back too, last time I tried working out some attempt at jump rope really hammered home that nah not there yet. It hurt pretty bad for a few days though I was careless to admit and quick to stop it when I noticed the pain.
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gingerbrat [she/her] - 1mon
Oh no, that sounds painful. Take it easy, please, and don't hurt yourself trying to get better again. It does sound like you're making progress though, so keep at it. Slowly but steadily
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un_mask_me [any] - 1mon
Appreciate your service to the park, that's awesome and I hope you can heal up and get that job you want sooner than later. Sounds like you really have an interest in something specific which is a cool thing to have and strive for!
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Wmill [they/them, fae/faer] - 1mon
Ty I find cleaning up an area I'm at helps with my nerves since being outside so much is tough (not to mention it keeps the cops away from me) I still got HVAC dreams and while I dread getting on a roof I would ideally love to work in restaurants or commercial things
Now having permission from Gingerbrat to post my whining. Please ignore this if you don't want to hear about my work woes.
I was called a slur by a person visiting a patient after I brought them coffee from the staff lounge. They were frustrated and lashed out and I get that, and I need thicker skin, but I'm still offended given that I had literally no involvement with their treatment. I just saw people sitting around and asked who wanted coffee or tea and smuggled it out and my reward was slurs thrown my way.
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gingerbrat [she/her] - 4w
I love that I'm getting the "Mom said I could" treatment for this comment
This is really rude, but sadly not atypical. I'm sorry that instead of a thank you, you got insulted. You deserve better, especially since you were being kind to them
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Keld [he/him, any] - 4w
Now if people don't like the post it's your fault instead
I've been subject to some abuse before, but always because I was directly involved in care. Getting it for doing someone a favor was new.
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gingerbrat [she/her] - 4w
You are such a smart cookie, I'm impressed!
Definitely, that's just weird
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un_mask_me [any] - 4w
It sucks to have someone take out their emotional stuff on you, but that doesn't excuse using a slur. It shouldn't have happened and it's perfectly okay to feel upset at the interaction. You were just trying to help, and that should be appreciated.
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Keld [he/him, any] - 4w
The food bank gave me 30 parsnips.
They gave me some nice stuff too. But they also gave me 30 parsnips.
What do I do with 30 parsnips
Edit: I'm gonna make hasselback parsnips.
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DisabledAceSocialist [comrade/them] - 4w
You can grate them and add them to salad.
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Keld [he/him, any] - 4w
Good idea, I shall consider that if the hasselback parsnips are a dud.
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un_mask_me [any] - 4w
You've become one of those math word problems: Keld has 30 parsnips, if they give away half, eat a quarter, and share an eighth, how many will they have leftover?
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Veggie_Deluxe [any, comrade/them] - 4w
Pickled parsnips are good!
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0x2640 - 1mon
weve noticed how few things are made with epileptic people in mind and it makes us sad
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gingerbrat [she/her] - 1mon
It really is sad. The most I see are warnings about flashing lights before videos and movies, where I'm like "It's nice you're doing this" but it is hardly inclusive and it doesn't even begin to cover the spectrum that is epilepsy.
5
Veggie_Deluxe [any, comrade/them] - 1mon
all i get is bad news. I am just so ready to be done with this motherfucker. I am only alive for the people i fear will come to resent me. my therapist is leaving at the end of the month for maternity leave. I am entering a perfect storm of a bad time.
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HexaSnoot [none/use name] - 1mon
I'm sorry your therapist is leaving on top of all that. If the situation is this dire, could you get a fill in therapist while she's gone? In the US, even if you're getting a rarer kind of therapy, Psychology Today's website has therapists you can filter down to exact kind of therapists and therapy and coverage for you needs.
My psychiatry office said they couldn't hook me up to exact therapy resources I need unless they picked a general therapist that, by chance, just happened to be what I want. So I asked around, and turns out my rare kind of therapist are on the website under my insurance.
Aside from that resource, here's a Covid-Concious Therapist Directory for both, in and outside of the US and Canada, plus "Brazil - Colombia - France - India - Australia Italy - Ireland - Japan - Malaysia - Mexico - New Zealand - Northern Mariana Islands - Singapore - United Arab Emirates - United Kingdom - Trinidad"
Certain therapists on there can seem pretty leftist. What i don't like about this website is that I can't find a way to filter it down to what Psychology Today's website lets me filter options down to.
Filters seem to only ask what state I'm in.
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Veggie_Deluxe [any, comrade/them] - 1mon
Thank you for those resources. I've been debating trying to find a temp, i just work so well with my current therapist and I've had such a difficult time finding people I can feel comfortable working with in that capacity. my current plan was to disconnect from reality as much and as often as possible lol
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HexaSnoot [none/use name] - 1mon
If you've got a lot of trauma, repressed rage, anger, depression, etc... I know a person who says they know multiple people that say EMDR changed their life forever. If you've got those things, I truly reccomend trying EMDR. People can literally get diseases from not processing grief and more issues from all of these things.
Imo EMDR is far better than checking out. I can also see it being good for people who think about treating complex trauma through psychedelics, but can't/don't want to trip.
5
Veggie_Deluxe [any, comrade/them] - 1mon
that sounds interesting, i don't believe I've ever heard of it
3
HexaSnoot [none/use name] - 1mon
There are at least a few methods. It's best to look it up. I was told EMDR specialists are somewhat rare because they need a high level of training, so it could be ideal to try it with one first.
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HexaSnoot [none/use name] - 1mon
Maybe you could use this as an opportunity to see if another kind of therapy/therapist will do better. Without my old therapists becoming unavailable I wouldn't have discovered special kinds of therapy and new therapists, and see which ones do and don't work for me. I felt comfortable with multiple therapists, but only one has worked as well because they do a special kinds of therapy i haven't experienced before.
Think of it as extra experience even if your current therapist is practically perfect.
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un_mask_me [any] - 1mon
Sorry it's all piling on at once. Hexasnoot already gave some great advice, so I won't add on too much. Hopefully you can find some shelter from the storm soon, and things even out a little bit. Sending positivity your way, comrade, you deserve a good rest.
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un_mask_me [any] - 1mon
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gingerbrat [she/her] - 1mon
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Keld [he/him, any] - 1mon
Food bank haul was cool. I got a bunch of berries and fresh fruit, a lot of veggies and bean sprouts. Yum yum.
Also they wanted to give me a quite large amount of mussels.
I feel bad for turning down food at the food bank, but "luckily" someone is always willing to poach anything not vegan you put in the trade pile.
I am going to make a salad tomorrow.
6
Keld [he/him, any] - 1mon
Because the local hospital administrative council is an elected position here we get electoral campaigns for it, and they're organised around the same political parties as normal.
Which is... bad. Because we have quite a few political parties centered exclusively around racism. So you'll have candidates running on "More preventative care" or "Shorter wait times" or "More funding for cancer" alongside "Keep our borders closed ".
Literally the only thing they could possibly do there is hire less foreign doctors, but even that isn't really up to them.
5
ahrienby [any] - 1mon
Hope everyone is fine. I just still work on making the mutual aid active.
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un_mask_me [any] - 1mon
Hope you can get some replies soon, comrade.
3
DisabledAceSocialist [comrade/them] - 1mon
I haven't been active the past couple of days as I haven't been feeling well. I was diagnosed with a vitamin D deficiency ages ago but stopped taking the pills as they were giving me headaches. I realised the other day this vitamin D deficiency could be contributing to my numbness and tingling, so i took a dose. It has given me the migraine from hell for the past couple of days. No migraine meds work on it. It dies down briefly then comes back. The universe hates me, I can't even do anything to help myself.
5
un_mask_me [any] - 1mon
That sounds awful, I'm so sorry it's been such a battle. It would be nice if there were an easier way to get the things you need without all the compounded side effects. Sending hugs, comrade. Hope you're able to recover from the migraine quickly.
3
DisabledAceSocialist [comrade/them] - 1mon
Thank you. Honestly everything is really getting on top of me right now. It's just never ending, worsening problems. I'm so worried about the tingling in my hands, legs and feet, it's now constant, really bad and I have no idea if it's the deficiency or something else and the GPs aren't interested in trying to find any other cause. All the supplements I'm given make me sick as a dog, the endless stress of the benefit appeal and having to beg for food, and now a really badly blocked drain which we can't afford to fix and is preventing me from showering and washing my hair. Honestly if I could just press a button to instantly end my existence I would.
3
un_mask_me [any] - 1mon
It really is piling on, goodness. Not being able to bathe is awful. How bad is the expected bill, do you think mutual aid might be able to help like with the car?
3
DisabledAceSocialist [comrade/them] - 1mon
We've been quoted £150. I did make a mutual aid post but there is a problem. I'm now within the 6 months before they check my accounts (assuming I win my appeal). That means I will have to explain anything going into my accounts now. It will look more suspicious having lots of small donations. If I could get one person to donate the full amount I could pass it off as an early xmas/bday present from a relative. But I guess I'm unlikely to get the full amount from one person.
3
un_mask_me [any] - 1mon
That does make it more complicated. The last thing you need is any issues with the benefits. Maybe someone will come through, whether it’s with funds or a way to DIY the drain.
3
DisabledAceSocialist [comrade/them] - 4w
Someone came through with an idea to DIY the drain, and it's at least made enough of an improvement that the shower is usable now, although the thing that's blocking it is still down there.
2
un_mask_me [any] - 4w
That's a small win then, at least you can bathe again. Hopefully it bought you some time before it needs to be dealt with again.
2
RuthBaderGonesburg [he/him] - 1mon
Have you tried D2? It doesn't raise vitamin D levels as fast as D3, but it still works to treat deficiency. It might be worth a try!
2
DisabledAceSocialist [comrade/them] - 1mon
Thanks for the tip. I'm due to have a vitamin D injection to see if thats any better but if that's awful too I will consider trying D2.
3
un_mask_me [any] - 4w
I hope you know you're not alone and that others out here care about your well being. Much love to all my disabled comrades <3
5
Veggie_Deluxe [any, comrade/them] - 4w
I am trying to get back into making music, got around to uploading this little dungeon synth track i did a little while back. I've been trying to get back into things i was passionate about before life got considerably worse and ive been tinkering with music and trying to get my Mandarin back up to fluent levels. I gotta Keep pushing forward<3
Vile Humors - Miasma
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un_mask_me [any] - 4w
This is awesome, ty for sharing! Very dungeon boss vibes, I had fun listening to it. I hope you continue to keep making music, you have a talent for it <3
3
Veggie_Deluxe [any, comrade/them] - 4w
Thank you, i really appreciate it<3
3
gingerbrat [she/her] - 4w
I had no idea Baroque Dungeon Synth was a thing in music, so I was surprised to listen to your little piece of art! I enjoyed it, so thank you for sharing. I also hope you can find the time (and passion) to continue pursuing this hobby of yours. It was fun listening to something that was completely new to me
2
Veggie_Deluxe [any, comrade/them] - 4w
Thank you, I had heard one track like it before and i liked the slightly more energetic feel it had over a lot of dungeon synth i had heard before.
3
Veggie_Deluxe [any, comrade/them] - 1mon
im really worried, i've noticed an unpleasant pressure in my lower abdomen, i thought it was hemorrhoids but it feels like its higher up, idk i literally can't deal with another thing rn. I could really use some tips on like, not feeling like every day should be the last day of my life. Literally nothing works for me, i can't get help and i dont get why i am supposed to want to keep doing this. I need sleep so bad, its rotting my mind never getting rest.
5
DisabledAceSocialist [comrade/them] - 4w
I wish I had an answer for you, |I could use one too.
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Veggie_Deluxe [any, comrade/them] - 4w
thanks, boo. Communities like this help. Even if nothing has changed it is a least a little bit of my internal chorus has been offloaded and 'seen'. My guy Soprano is amazing but he can't speak English very well and my therapist is great at what she does but is not going through it herself. Everyone here has been very kind to me and is more in tune with my experience. (also helps that this website doesn't have the same fash problem as reddit etc)
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mononoke @lemmy.sdf.org - 4w
Oh my god I love you Soprano...
5
Veggie_Deluxe [any, comrade/them] - 4w
I'll pass your kind words along to him
4
un_mask_me [any] - 4w
Absolutely adorable floof you got there
4
mononoke @lemmy.sdf.org - 4w
To actually respond, I have pretty much checked out of interacting with most of society when I can help it, because they hate people like us that have anything wrong with them and have no interest in being better about it. My animal (another void like yours) is the purity of the world that keeps me alive. They are so much easier to understand than other people. As long as this world has them, I'll keep going. Maybe that helps you too. I'm sorry that I can't be more helpful.
4
Veggie_Deluxe [any, comrade/them] - 4w
Yeah this guy helps me so much, i've had to overcome some agoraphobic tendencies to get food and stuff for him, and i love him so much that my own discomfort comes second lol
4
gingerbrat [she/her] - 4w
Such a sweet floofy one!
3
gingerbrat [she/her] - 1mon
Going to the doctor and asking for help is all I can recommend, but I understand this exhaustion. Just wanting to rest and get sleep, which I do hope you'll get soon.
And no, everyday should at least feel like everyday, if not like a good day. I hope it's nothing serious troubling you and you can get some help soon. Stay strong, love, and I know you'll manage
4
Veggie_Deluxe [any, comrade/them] - 4w
thanks. I'm really not in a good spot in life right now. really just in kind of a holding pattern until some force in my life shifts. I feel like i am racing a clock but i have no defined objective or possible state of victory. I zoom out sometimes a realize i am not doing well but that kind of only increases my anxiety. I've done everything asked of me and literally nothing has worked out for me. I know curses arent real but like, it would be easier for me if they were and i could just say "oh im in hell that explains everything" but instead i just kind of tear myself apart by clinging to hope.
5
HexaSnoot [none/use name] - 4w
I just posted a question that is partly about my disabilities and mostly about what I'm proud of. Just watched Frankenstein 2025 last night and it has me rethinking what I can be proud of.
4
un_mask_me [any] - 4w
I just watched it too! Visually very cool. I think I'm proud of how far I've come as a person, and being able to find a bit of joy in each day. It's honestly inspiring to me to meet and talk to people of all walks of life and abilities. Everyone has such interesting and varied experiences, I wish I could talk to and meet more people, if only to hear their thoughts and stories.
Appreciate you sharing, sorry I missed the original post.
3
HexaSnoot [none/use name] - 4w
Guillermo del Toro is amazing and I aim to watch every last movie of his. Finding joy can be hard with certain disabilities and mental states, so congrats. I love people even though I'm socially anxious, I hope for the same in knowing people and their wisdom, experiences, and how they deal with and enjoy life.
You've got nothing to feel sorry about.
3
Keld [he/him, any] - 1mon
Aaaaaaaaaaaaaaaaaa
I forgot I had a meeting today.
I have a 50 minute trip to get there in 30 minutes.
Aaaaaaaaaaaaa
They're not answering the phone.
4
Keld [he/him, any] - 4w
Edit: Whining about work is probably a bit insensitive when some here can't find any.
4
gingerbrat [she/her] - 4w
No, it is not insensitive. Work is stressful and can be very unpleasant, so it's just as legitimate as complaining about never finding work (which is also immensely stressful and unpleasant).
7
un_mask_me [any] - 4w
Pet sitting this weekend has reminded me of how much love and affection animals can give. I wish it was feasible for everyone to adopt pets. My legs are numb from this cat in my lap and I couldn't feel much more content at their warmth and little motor purr. I'd feel jealous, but I can't provide for a pet like their owners and I'm just glad they're so well loved and properly cared for. I'd spoil this fluff if I had them, too.
4
Arahnya [he/him, fae/faer] - 4w
I want a pet so bad 😔 but I cant feasibly take care of one. The closest I can get is feeding feral pigeons.
4
Keld [he/him, any] - 4w
The middle ground is having friends and family with pets.
Also this way you get to spoil it without having to deal with the consequences
4
un_mask_me [any] - 4w
Yeah, same here. I can do it for a few days but it burns me out on top of being expensive. I love feeding the crows and songbirds in the neighborhood when I can. Wildlife is so cool to just sit and watch sometimes.
2
DisabledAceSocialist [comrade/them] - 4w
Yeah if it wasn't for my landlady's dog I wouldn't even carry on.
3
un_mask_me [any] - 4w
Animals are such treasures, I'm glad landlady's dog is good company
un_mask_me in disabled
Disabled Community Megathread from November 3rd, 2025 to November 16, 2025
You deserve to be acknowledged, taken care of, held, and loved in abundance.
Friendly reminder to please use ::: spoiler spoiler tags and content warnings [cw] Hexbear CoC ::: for sensitive content that falls under Hexbear's Code of Conduct.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
Mask up, love one another, and stay alive for one more week.
Eating yummy broccoli. No one at the food bank wanted their broccoli so I got 7 heads of broccoli. People at the food bank are such picky eaters I swear.
Broccoli is so good!!
It is so good, and there's basically no way to do it wrong. You can bake it, you can sauté it, you can steam it, you can boil it, it's all gonna come out nice and delicious.
You can even make soup out of it, and it tastes so delicious
Nice haul, broccoli is probably 30% of my diet and makes any meal better
I love broccoli but more than a handful and I get gastric disturbances.
Oh no :(
A handful is usually all you need! I don't normally eat broccoli raw, but when I do I definitely notice a difference. Same with cauliflower; but when I cook it first it doesn't mess with my stomach as much. I think it removes some of the things that can cause distress, if I'm remembering correctly. A lot of that depends on the individual, though. Sometimes our bodies just don't like what we try to feed them, especially when meds and illnesses come into play.
The problem is I've been diagnosed with a folate deficiency and the folic acid supplements aggravate my bladder terribly. I thought I would get extra folate by eating extra veg but the gastric symptoms it gives me are too bad. My tingling and pins and needles are getting worse and I'm really scared about it because it seems there's nothing i can do, and the GP is so useless, she just tells me to take the folic acid anyway.
Oh I wasn't suggesting that you should try it that way, I guess I was just over-sharing, sorry. I'm sorry the pins and needles are getting worse and that your GP isn't helping at all. You'd think they'd have a shot or something they could give you that wouldn't mess with your stomach. I hope you can get some proper care soon.
I'm resigned to the fact that I'll never get proper care.
Could it be that the folate is doing something to the fibroids? And out of curiosity (don't answer if you don't want to share) what type of disturbances do you experience?
I've had IBS for ages, although it was quite recent that I realised that a lot of vegetables were aggravating it. Wind and loose stools being the main symptoms of that, and caused by many different veggies. And the veggies that don't trigger the IBS trigger migraines and bladder irritation. The only ones I can eat without any bother are potatoes, carrots and spinach, although apparently spinach can cause kidney stones so I'm hesitant to eat it more than twice a week. It's just an awful way to live, I would love to be vegan and eat lots of vegetables, I wanted to do Dr Joel Fuhrman's Eat to Live diet but it's out of the question.
I don't think the folate is doing anything to the fibroids, according to google, unmetabolised folic acid gets into your bladder and irritates it, so that's probably the issue with that.
This is so horrible, especially with the veggies that you want to eat
Well except desserts.
Ever since my surgery, I've been trying to fit in regular workouts, and if not that, at least half an hour of walking through the woods to keep myself fitter than before. Now, half a year later, I still have issues with my surgical scar and due to depression and basically being sick for an entire month, I've not only lost all of my stamina, but also gained almost all my weight back. I feel constantly exhausted and tired, but I still keep on walking and running. At some point, it just has to get better. Even if it takes a year.
I'm too lazy to give up now, but I'm frustrated with how sad my life is atm, and how my body is one of the two major reasons for it. I can't believe I managed to organize 380 people for an entire week with 24 hours of sleep only three years ago, and now I get a headache when I sleep less than 9 hours. It's a constant uphill battle, but I simply refuse to give up, even when nothing seems to indicate it's gonna get better.
You're gonna do great. You're working hard at it. If you can't make it get better, it couldn't have gotten better.
It feels so in vain most of the time, as if me trying to get better is just a Sisyphus task. I thank you for your kind words, sweetie, I needed them a lot
You are doing good work keeping at it. I need to get some of that spirit into my life rn, i am losing steam bad (in an overall life sense). So even if it reads as empty, I am proud of you.
Thank you
It just doesn't seem to get any easier, you know?
I am proud of you too. Your other comment suggests you are struggling a lot too, and I'm sorry it's this bad in your life as well. I wish I could help more fundamentally, but if you want to, I'll mentally take you along for a little walk
Sorry to hear this.
Maybe a different type of sport like swimming might help?
Not really an opportunity to go swimming here frequently, and it's very expensive too. It's not like I don't enjoy walking, but getting sick and still suffering from the surgery makes every type of sport hard. It's getting better though, it's just very hard and frustrating. Thank you for making the suggestion!
Being outside is good for mental health too, even if walking is difficult.
It is. Just looking at a forest and smelling the air sometimes is enough to clear your thoughts <3
Being able to walk around a bit now I've been walking down to the beach, it's just at the end of the road and so good to get out there again.
I'm so happy to hear that! It's been a while since you've been there, so I was hoping you could go there again.
Thank you.
It is frustrating, but I'm proud of you for keeping at it even when it feels heavy and impossible. Sometimes the most defiant thing we can do is keep pushing forward against the odds. Keeping active out of spite is just as effective as keeping active from necessity. :)
I shall stay active out of spiteful necessity from now on. This way, I'll keep going regardless haha
Thank you sweetie, I appreciate you <3
i think anyone who yells at me ever should explode into a billion pieces
Why do people keep yelling at you, don't they know it's a guaranteed explosive end for them?
I'm sorry you got yelled at, sweetie
Eternal explosions on the ones who yell at you
If anything that's too mild.
Neurotypicals: “You are autistic, this means you can sometimes say out-of-pocket, insensitive things because you cannot hope to know any better.”
Also neurotypicals: “Hey by the way! I will randomly make comments on your appearance, and how you remind me of this famous unattractive person you never asked for! I know you can’t help it, but I figured you need to be reminded of your insecurities. Just in case you forgot! Wait, why are you mad at me?”
Sure, and I’M the one who can’t understand social cues….and I’m taking this “advice” from people who never keep their unasked for opinions or commentary to themselves.
Neurotypical people use their judgy comments more strategically (although accidents happen for anyone). They say them when they are insecure, feel threatened or for some other reason want to make someone else feel bad about themselves. This is also why they get more offended when a neurodivergent person says something that the NT person perceives as judgy. The NT person assumes that the ND person intentionally wants them to feel bad because they project their own behavioural reasoning onto others.
To me, it always feels like what they're actually saying is "Don't tell the truth to someone, just be judgy when you talk about or to them." I share your anger, it's frustrating how insensitive some people are
Feels like a lot of NTs make themselves feel better by punching down this way. Almost as if by othering those around them they gain a sense of power and control.
COVID has made a real doomer out of me. As usual, the people taking it seriously now will be the ones to pick up the mess caused by the hubris of those who think they're built different, your "comrades" included. Silence = death.
It's almost impossible to stay optimistic when you look at the state of covid treatment - generally speaking. It's becoming harder and harder to get new vaccination shots where I live, masks are getting more expensive, and even if you manage to get a mask and a shot, people will treat you like you're infectious when you walk into any place with a mask on. It's disturbing how quickly the covid denial swept through all branches of society.
Please don't give up hope yet, though I know it's hard, I'm sure there's some sort of silver lining at the end of the tunnel
I feel compelled to push back wherever I see complacency about all of this madness, but I can feel it taking its toll. It was Sankara who said we don't get the luxury of being tired of explaining...but I am very, very tired.
Maybe we shouldn't treat tiredness as a luxury. I mean, I get what Sankara was saying, but it's not like you can stay up on your feet forever. We all need breaks, so becoming and being tired is a foregone conclusion. Maybe what we need is shifts in explaining. You can't do it all on your own, you know?
I used to get so angry when people falsely accused my text of being AI-generated, but at this point, I really don't care. It doesn't help that I use em dashes a good deal—nothing wrong with that!
I wish people would realise that ai writes like that because people already wrote like that
Em dashes are cool. I wish I knew how to use them; though I suppose I could just misuse them like I misuse semicolons
Exactly, LLMs are fed human data and give you the statistically most likely output based on that.
::: spoiler only open if you're ok with a joke about the subject. How you write is not only fine — it's none of their business. :::
I don't understand how people think that the use of one textual sign could be indication for an AI text. I'm sorry people accused you of that. Em dashes are amazingly helpful for writing well structured texts and I'm happy to see someone uses them correctly! Most people don't (and AI doesn't either).
people don't care about that structuring when writing emails or text messages so it's a signifier of high-effort or formality and they're harder to type unless you have the automatic override on double hyphens.
if someone is using emdashes outside of a textbook or institutional report it's unusual and most people (including me) aren't writing enthusiasts to pick up on weird grammar or style besides the obvious punctuation mark they usually don't use.
Using one in an email is strange enough, I agree, but it does get used in creative literature too.
I am also a big fan of the em dash as one of those dreadful book-readers. Don't let them shame you out of something that was around before they knew what words were.
It's great being able to get out and go to shops and things again, but nobody is wearing masks and multiple people literally cough and splutter all over me. They don't even turn their heads away or cover their mouths. Just disgusting.
Oh and I have a lovely new thing to worry about. I've always heard that if i win my benefits case they will check the previous 6 months of my bank accounts. But now I've seen threads from disabled people on other sites saying they checked their accounts right from the start of the claim! The disability charity Scope told me it's OK that some people put money in my paypal account because they said it's a gift, but I'm not so sure, it might look suspicious, from multiple random people.
It's infuriating that so many people think living on disability benefits is the easy choice. Constant assessments, having your payments stopped for no reason, having to beg for food, bank checks and constant worry you'll be told you've done something wrong. Not to mention the endless threats from the government to make it more difficult to claim and to lower payments. What a way to live. All for the crime of getting too sick to work.
People have learned nothing from the pandemic, and kind of seemed to have regressed in caring at all about illness. It's good to be able to get out of the house, though, even when it can cause anxiety with other people thrown into the mix.
I hope the payments aren't used against you for your benefit appeal. It's ludicrous to enforce such awful circumstances on the disabled for the sake of capital. What are you supposed to do when they don't even provide you with the means to eat while this appeal process is in motion? Just ludicrous. I hope you get the benefits soon and this unnecessary stress is put behind you quickly.
Thanks. I think they just hope we die or kill ourselves. I don't know why they don't just legalise assisted suicide at this point.
Had my vitamin D injection just now. Now I'm on tenterhooks to see if it's going to make me ill like the tablets do.
I'm keeping my fingers crossed you don't get any side effects
Thank you.
Apparently it can take weeks or months to notice anything from the injectable form so I guess I'll be worrying about it for a while.
I'm going to stay optimistic and say I believe that you will get better
Thank you.
I didn't know vitamin D injections existed. Does this mean people at the north and south pole, and other dim snowy places, don't have to bathe like reptiles under a light for hours each day?
I guess not.
do you know how much vitamin d was in the injection? I am always very low on vitamin d and i wonder if that is something i could persue
200,000 iu. It's meant to last from anywhere from 3 months to a year depending on your level of deficiency.
Interesting, thank you. I am going to check and see if my doctor knows how i can get that done before the cold dark season really kicks in lol
I think you can just buy them online too.
Hopefully it helps and the side effects aren't noticeable. I'd say it's normal to be anxious about it after the reactions you had to the pill form. Fingers crossed this will alleviate some of the other things going on.
Thank you.
Was cleaning the park yesterday for some exercise post Halloween and yeah almost fell on my butt, got into a swing of picking up wrappers when I had to go up a little pool. Used my hurt ankle to get up without thinking, had to switch feet and step up with my good one.
More time passes and that fall I had keeps coming back from time to time. Shit sucks I do hope my full mobility returns back to me, I wanna work a job that will probably have me going up and down ladders one day.
I hope you'll get our full mobility back soon. Do you have any exercises that can help with that? If not, I hope enough rest will do the trick for you.
Ladders are amazing tools, you should be able to climb them again
Ty
I got some things I should be doing to help that I need to get back too, last time I tried working out some attempt at jump rope really hammered home that nah not there yet. It hurt pretty bad for a few days though I was careless to admit and quick to stop it when I noticed the pain.
Oh no, that sounds painful. Take it easy, please, and don't hurt yourself trying to get better again. It does sound like you're making progress though, so keep at it. Slowly but steadily
Appreciate your service to the park, that's awesome and I hope you can heal up and get that job you want sooner than later. Sounds like you really have an interest in something specific which is a cool thing to have and strive for!
Ty I find cleaning up an area I'm at helps with my nerves since being outside so much is tough (not to mention it keeps the cops away from me) I still got HVAC dreams and while I dread getting on a roof I would ideally love to work in restaurants or commercial things
disability activist alice wong passed yesterday
her twitter
Now having permission from Gingerbrat to post my whining. Please ignore this if you don't want to hear about my work woes.
I was called a slur by a person visiting a patient after I brought them coffee from the staff lounge. They were frustrated and lashed out and I get that, and I need thicker skin, but I'm still offended given that I had literally no involvement with their treatment. I just saw people sitting around and asked who wanted coffee or tea and smuggled it out and my reward was slurs thrown my way.
I love that I'm getting the "Mom said I could" treatment for this comment
This is really rude, but sadly not atypical. I'm sorry that instead of a thank you, you got insulted. You deserve better, especially since you were being kind to them
Now if people don't like the post it's your fault instead
I've been subject to some abuse before, but always because I was directly involved in care. Getting it for doing someone a favor was new.
You are such a smart cookie, I'm impressed!
Definitely, that's just weird
It sucks to have someone take out their emotional stuff on you, but that doesn't excuse using a slur. It shouldn't have happened and it's perfectly okay to feel upset at the interaction. You were just trying to help, and that should be appreciated.
The food bank gave me 30 parsnips. They gave me some nice stuff too. But they also gave me 30 parsnips. What do I do with 30 parsnips
Edit: I'm gonna make hasselback parsnips.
You can grate them and add them to salad.
Good idea, I shall consider that if the hasselback parsnips are a dud.
You've become one of those math word problems: Keld has 30 parsnips, if they give away half, eat a quarter, and share an eighth, how many will they have leftover?
Pickled parsnips are good!
weve noticed how few things are made with epileptic people in mind and it makes us sad
It really is sad. The most I see are warnings about flashing lights before videos and movies, where I'm like "It's nice you're doing this" but it is hardly inclusive and it doesn't even begin to cover the spectrum that is epilepsy.
all i get is bad news. I am just so ready to be done with this motherfucker. I am only alive for the people i fear will come to resent me. my therapist is leaving at the end of the month for maternity leave. I am entering a perfect storm of a bad time.
I'm sorry your therapist is leaving on top of all that. If the situation is this dire, could you get a fill in therapist while she's gone? In the US, even if you're getting a rarer kind of therapy, Psychology Today's website has therapists you can filter down to exact kind of therapists and therapy and coverage for you needs.
My psychiatry office said they couldn't hook me up to exact therapy resources I need unless they picked a general therapist that, by chance, just happened to be what I want. So I asked around, and turns out my rare kind of therapist are on the website under my insurance.
Aside from that resource, here's a Covid-Concious Therapist Directory for both, in and outside of the US and Canada, plus "Brazil - Colombia - France - India - Australia Italy - Ireland - Japan - Malaysia - Mexico - New Zealand - Northern Mariana Islands - Singapore - United Arab Emirates - United Kingdom - Trinidad"
Certain therapists on there can seem pretty leftist. What i don't like about this website is that I can't find a way to filter it down to what Psychology Today's website lets me filter options down to. Filters seem to only ask what state I'm in.
Thank you for those resources. I've been debating trying to find a temp, i just work so well with my current therapist and I've had such a difficult time finding people I can feel comfortable working with in that capacity. my current plan was to disconnect from reality as much and as often as possible lol
If you've got a lot of trauma, repressed rage, anger, depression, etc... I know a person who says they know multiple people that say EMDR changed their life forever. If you've got those things, I truly reccomend trying EMDR. People can literally get diseases from not processing grief and more issues from all of these things.
Imo EMDR is far better than checking out. I can also see it being good for people who think about treating complex trauma through psychedelics, but can't/don't want to trip.
that sounds interesting, i don't believe I've ever heard of it
There are at least a few methods. It's best to look it up. I was told EMDR specialists are somewhat rare because they need a high level of training, so it could be ideal to try it with one first.
Maybe you could use this as an opportunity to see if another kind of therapy/therapist will do better. Without my old therapists becoming unavailable I wouldn't have discovered special kinds of therapy and new therapists, and see which ones do and don't work for me. I felt comfortable with multiple therapists, but only one has worked as well because they do a special kinds of therapy i haven't experienced before.
Think of it as extra experience even if your current therapist is practically perfect.
Sorry it's all piling on at once. Hexasnoot already gave some great advice, so I won't add on too much. Hopefully you can find some shelter from the storm soon, and things even out a little bit. Sending positivity your way, comrade, you deserve a good rest.
Food bank haul was cool. I got a bunch of berries and fresh fruit, a lot of veggies and bean sprouts. Yum yum. Also they wanted to give me a quite large amount of mussels. I feel bad for turning down food at the food bank, but "luckily" someone is always willing to poach anything not vegan you put in the trade pile. I am going to make a salad tomorrow.
Because the local hospital administrative council is an elected position here we get electoral campaigns for it, and they're organised around the same political parties as normal. Which is... bad. Because we have quite a few political parties centered exclusively around racism. So you'll have candidates running on "More preventative care" or "Shorter wait times" or "More funding for cancer" alongside "Keep our borders closed
".
Literally the only thing they could possibly do there is hire less foreign doctors, but even that isn't really up to them.
Hope everyone is fine. I just still work on making the mutual aid active.
Hope you can get some replies soon, comrade.
I haven't been active the past couple of days as I haven't been feeling well. I was diagnosed with a vitamin D deficiency ages ago but stopped taking the pills as they were giving me headaches. I realised the other day this vitamin D deficiency could be contributing to my numbness and tingling, so i took a dose. It has given me the migraine from hell for the past couple of days. No migraine meds work on it. It dies down briefly then comes back. The universe hates me, I can't even do anything to help myself.
That sounds awful, I'm so sorry it's been such a battle. It would be nice if there were an easier way to get the things you need without all the compounded side effects. Sending hugs, comrade. Hope you're able to recover from the migraine quickly.
Thank you. Honestly everything is really getting on top of me right now. It's just never ending, worsening problems. I'm so worried about the tingling in my hands, legs and feet, it's now constant, really bad and I have no idea if it's the deficiency or something else and the GPs aren't interested in trying to find any other cause. All the supplements I'm given make me sick as a dog, the endless stress of the benefit appeal and having to beg for food, and now a really badly blocked drain which we can't afford to fix and is preventing me from showering and washing my hair. Honestly if I could just press a button to instantly end my existence I would.
It really is piling on, goodness. Not being able to bathe is awful. How bad is the expected bill, do you think mutual aid might be able to help like with the car?
We've been quoted £150. I did make a mutual aid post but there is a problem. I'm now within the 6 months before they check my accounts (assuming I win my appeal). That means I will have to explain anything going into my accounts now. It will look more suspicious having lots of small donations. If I could get one person to donate the full amount I could pass it off as an early xmas/bday present from a relative. But I guess I'm unlikely to get the full amount from one person.
That does make it more complicated. The last thing you need is any issues with the benefits. Maybe someone will come through, whether it’s with funds or a way to DIY the drain.
Someone came through with an idea to DIY the drain, and it's at least made enough of an improvement that the shower is usable now, although the thing that's blocking it is still down there.
That's a small win then, at least you can bathe again. Hopefully it bought you some time before it needs to be dealt with again.
Have you tried D2? It doesn't raise vitamin D levels as fast as D3, but it still works to treat deficiency. It might be worth a try!
Thanks for the tip. I'm due to have a vitamin D injection to see if thats any better but if that's awful too I will consider trying D2.
I hope you know you're not alone and that others out here care about your well being. Much love to all my disabled comrades <3
I am trying to get back into making music, got around to uploading this little dungeon synth track i did a little while back. I've been trying to get back into things i was passionate about before life got considerably worse and ive been tinkering with music and trying to get my Mandarin back up to fluent levels. I gotta Keep pushing forward<3 Vile Humors - Miasma
This is awesome, ty for sharing! Very dungeon boss vibes, I had fun listening to it. I hope you continue to keep making music, you have a talent for it <3
Thank you, i really appreciate it<3
I had no idea Baroque Dungeon Synth was a thing in music, so I was surprised to listen to your little piece of art! I enjoyed it, so thank you for sharing. I also hope you can find the time (and passion) to continue pursuing this hobby of yours. It was fun listening to something that was completely new to me
Thank you, I had heard one track like it before and i liked the slightly more energetic feel it had over a lot of dungeon synth i had heard before.
im really worried, i've noticed an unpleasant pressure in my lower abdomen, i thought it was hemorrhoids but it feels like its higher up, idk i literally can't deal with another thing rn. I could really use some tips on like, not feeling like every day should be the last day of my life. Literally nothing works for me, i can't get help and i dont get why i am supposed to want to keep doing this. I need sleep so bad, its rotting my mind never getting rest.
I wish I had an answer for you, |I could use one too.
thanks, boo. Communities like this help. Even if nothing has changed it is a least a little bit of my internal chorus has been offloaded and 'seen'. My guy Soprano
is 
amazing but he can't speak English very well and my therapist is great at what she does but is not going through it herself. Everyone here has been very kind to me and is more in tune with my experience. (also helps that this website doesn't have the same fash problem as reddit etc)
Oh my god I love you Soprano...
I'll pass your kind words along to him
Absolutely adorable floof you got there
To actually respond, I have pretty much checked out of interacting with most of society when I can help it, because they hate people like us that have anything wrong with them and have no interest in being better about it. My animal (another void like yours) is the purity of the world that keeps me alive. They are so much easier to understand than other people. As long as this world has them, I'll keep going. Maybe that helps you too. I'm sorry that I can't be more helpful.
Yeah this guy helps me so much, i've had to overcome some agoraphobic tendencies to get food and stuff for him, and i love him so much that my own discomfort comes second lol
Such a sweet floofy one!
Going to the doctor and asking for help is all I can recommend, but I understand this exhaustion. Just wanting to rest and get sleep, which I do hope you'll get soon.
And no, everyday should at least feel like everyday, if not like a good day. I hope it's nothing serious troubling you and you can get some help soon. Stay strong, love, and I know you'll manage
thanks. I'm really not in a good spot in life right now. really just in kind of a holding pattern until some force in my life shifts. I feel like i am racing a clock but i have no defined objective or possible state of victory. I zoom out sometimes a realize i am not doing well but that kind of only increases my anxiety. I've done everything asked of me and literally nothing has worked out for me. I know curses arent real but like, it would be easier for me if they were and i could just say "oh im in hell that explains everything" but instead i just kind of tear myself apart by clinging to hope.
I just posted a question that is partly about my disabilities and mostly about what I'm proud of. Just watched Frankenstein 2025 last night and it has me rethinking what I can be proud of.
I just watched it too! Visually very cool. I think I'm proud of how far I've come as a person, and being able to find a bit of joy in each day. It's honestly inspiring to me to meet and talk to people of all walks of life and abilities. Everyone has such interesting and varied experiences, I wish I could talk to and meet more people, if only to hear their thoughts and stories.
Appreciate you sharing, sorry I missed the original post.
Guillermo del Toro is amazing and I aim to watch every last movie of his. Finding joy can be hard with certain disabilities and mental states, so congrats. I love people even though I'm socially anxious, I hope for the same in knowing people and their wisdom, experiences, and how they deal with and enjoy life.
You've got nothing to feel sorry about.
Aaaaaaaaaaaaaaaaaa I forgot I had a meeting today. I have a 50 minute trip to get there in 30 minutes. Aaaaaaaaaaaaa
They're not answering the phone.
Edit: Whining about work is probably a bit insensitive when some here can't find any.
No, it is not insensitive. Work is stressful and can be very unpleasant, so it's just as legitimate as complaining about never finding work (which is also immensely stressful and unpleasant).
Pet sitting this weekend has reminded me of how much love and affection animals can give. I wish it was feasible for everyone to adopt pets. My legs are numb from this cat in my lap and I couldn't feel much more content at their warmth and little motor purr. I'd feel jealous, but I can't provide for a pet like their owners and I'm just glad they're so well loved and properly cared for. I'd spoil this fluff if I had them, too.
I want a pet so bad 😔 but I cant feasibly take care of one. The closest I can get is feeding feral pigeons.
The middle ground is having friends and family with pets. Also this way you get to spoil it without having to deal with the consequences
Yeah, same here. I can do it for a few days but it burns me out on top of being expensive. I love feeding the crows and songbirds in the neighborhood when I can. Wildlife is so cool to just sit and watch sometimes.
Yeah if it wasn't for my landlady's dog I wouldn't even carry on.
Animals are such treasures, I'm glad landlady's dog is good company
New mega here