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Disabled Community Megathread 2/10/25 — 2/16/25

Hello disabled comrades! Hoping that everyone is doing alright. If you are struggling, I’m with you. We will get through it together.

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

DisabledAceSocialist [comrade/them] - 10mon

I am so tired of the hypocrisy displayed towards disabled and poor people. I was watching a British political debate show, people were debating whether assisted suicide should be legal. A rabid Christian was vehemently arguing that it should not be legal, because he's so very worried that disabled people will feel pressured to end their lives when they don't want to. Later, the conversation turned to disability benefits. This same piece of crap argued that it should be much more difficult to get disability benefits, partially because people were faking to game the system and partially because it would do the disabled a world of good to go out to work. The names of some disabled people who'd died of starvation and suicide after their benefits were stopped, or dropped down dead at their desks after being forced back to work, were read out to show the consequences of this. The Christian just basically said it's a shame some people fall through the cracks/they should have tried harder to get the help they need. So it's fine to impoverish us to death slowly and horribly against our wills, but outrageous to give us a quick painless exit at our request.

It reminded me of the debate in America a while ago, about poor people's free food cards. Apparently in America people on a low income get supermarket cards that they can use to get free food. They could go there, choose their own food and then pay with these cards. There was a big hullaballoo in the news when it was discovered that some of these people were using their cards to buy nice, tasty, nutritious food instead of the tasteless, nutritionless crap people think poor people ought to receive.

I don't know about the rest of you but my experience with food banks is that they give drinks like tea, coffee and milk, along with some sugar, cookies, crisps, pasta and bread. No protein, no fruit, no vegetables. Just complete and utter crap that's not even filling. And they don't give enough to last until you can get another food bank appointment, so many days you have nothing at all. After several months living like this, I fainted in the street and someone who saw called an ambulance. It turned out I had developed many nutritional deficiencies. In fact, every deficiency they tested for, I had. Anaemia (which was why I'd fainted), B12, folate, vitamin D. If they'd tested for others I'm sure I would have been found to have other deficiencies too. Their response to this was to provide me with supplements on the NHS. So in other words, still leaving me starving, still relying on the shitty food bank, but with some supplements to mask the worst of the deficiency symptoms. Still hungry. Still deficient in the things they hadn't tested me for. Leaving me with no choice but to eventually start begging strangers for food aid.

This is the real-world consequence of insisting that poor people must eat poor people food instead of nutritious food. So, when the people of America discovered that food aid recipients were using their cards to buy decent food, there was outrage. They were particularly incensed that a man had used his card to get some lobster. People were demanding that food card recipients be banned from buying good food with their cards, and should instead only be allowed basics suitable for poor people. I remember Michelle Obama even saying people with these cards shouldn't even be allowed to have potatoes. I don't know whether this rule got passed or not, but what disgusted me was the outrage that their fellow human beings were getting good food for free.

And it's the same with disability benefits. People disgusted and outraged that their fellow human beings are being enabled to get food and shelter "for free," ie paid for by the taxpayer. Just like the Americans wanted food aid recipients to only get the worst food, people in the UK regularly say disability benefits are too easy to get and too high. I remember a redditor complaining that she only earns 1700 a month and it's not enough to live on. She then went on to complain that some disabled people were getting 1400 a month and it's far too much for them. If 1700 isn't enough for her to live on, how is 1400 too much for a disabled person to live on? The answer of course, is that the disabled person just doesn't deserve it because they didn't work for it. Just like the American food aid recipients just don't deserve decent food because they didn't pay for it themselves.

And yet, through all this, these same people will still claim they are so worried about disabled people that they simply cannot let us have assisted suicide, our lives are too precious to risk. Not too precious to be saved from starvation and homelessness though. Not too precious to keep receiving our necessary prescriptions without having to constantly fight for them. I would have more respect for these people if they just admitted they don't care what happens to us instead of pretending to care while simultaneously trying to prevent us from accessing all the tings we need to live.

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gingerbrat [she/her] - 10mon

I wanna start by saying that everytime I check the mega and see a new post made by you, I'm relieved to see you're still alive. <3

As to the treatment of disability and poverty, I just... It's soulcrushing to even reply to what you wrote, and I don't mean the inhumanity of these so-called christians and others. It does seem like hypocrisy at first glance, but let's be real, letting the disabled and poor die slowly instead of offering assisted suicide makes it so much easier to look away for them. Near-dead people are always easier to ignore than piles of bodies, or so they seem to think. It's also cheaper bc disposal doesn't have to be done in large numbers but slowly and steadily. doomjak

Shit, I hate verbalizing this tortured thinking, this total regard for life and health, including their own. Let's be honest, at the end of the day, it fucks them up mentally too that they'd just prefer to ignore the disbled and poor. Most of them don't show it, but just knowing that they might not sleep well at night makes my sleeplessness feel a lot less bad. At least I know I'm human and give a fuck. And at present, I take any satisfaction I can get. Even if it's petty.

People who believe that the poor and disabled are getting too much help are the worst. They know it's not true, but they'll keep spewing it forth regardless.

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DisabledAceSocialist [comrade/them] - 10mon

Thanks so much. I don't think I would still be alive if it wasn't for all the support I've received, both financial and in terms of emotional support and friendship, on this site. In fact I was just thinking what a stark contrast it is to reddit, which I used to be a member of before finding this place. Whenever I spoke there about issues such as the poverty disabled people are kept in, difficulty accessing medication, the inhumanity of the disability benefit process, etc, most redditors were horrible about it. The kindness and empathy shown on this site, well, I didn't even know people could be so empathetic as I've never experienced this elsewhere, not online or in real life. I remember once making a post on reddit's NHS subreddit, speaking about how the GP surgery was making it a bit difficult for me to get a needed medication, purely because of the cost. Every redditor who responded was awful, telling me that I'm a burden and a drain on the NHS and should pay for my own meds instead of bleeding the taxpayer dry. When I said I couldn't pay for them due to going through a disability benefit appeal and having no money, they said I was a burden and a drain on society for that. They said I should just go without my meds rather than waste the country's money - even my cancer and thyroid meds which I would die without. But then when I say I want assisted suicide, it's "Oh no, life is precious. People care about you. Just find something to live for. We don't want disabled people to die."

This is the only place where people have said I'm deserving of the medication I need. The only place where people have helped me get food. Before finding this place I got so desperate for food I posted on a Christian website, asking for advice about accessing Christian food pantries. I was under the impression that Christians feed the hungry. Those loving Christians told me to "man up and sort your own problems out," and that I shouldn't even get disability payments anyway because "that's socialism," and that God is sending me my troubles to humble me, and that until I humble myself I am bringing more of this on myself. These same Christians could be seen posting in other threads about how they were trying to be more holy and like Jesus. well, I don't recall Jesus telling the hungry 5000 that they couldn't have any bread or fish because "that's socialism."

You know, even the Nazis were kinder to the disabled than Christians and the government, gassing them to death, and being proud of it. I'd rather a quick death and for people to admit what they've done, than hypocrites pretending to care, while slowly starving us, and sweeping it all under the rug to hide their actions so they can keep convincing themselves they are decent people. Christians are told to give the shirt off their back if asked for it, but none of them will even give a minute of their time to help someone work out how to access food.

I think what made me the angriest though, are when there are news reports of a disabled person who has starved to death after their benefits were stopped (such as Errol Graham and Mark Wood). The reports and comments from people are always so victim blaming, making out that it's the disabled person's own fault for not trying harder to access food. These people have clearly never tried to access food banks or go through the benefit appeal process, and it's even harder when you're ill/disabled. I hate the way people assume there is so much help easily available and so anyone who falls through the cracks just didn't try hard enough.

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gingerbrat [she/her] - 10mon

It's bullshit, getting aid is one of the hardest things to do in life, even if you don't feel ashamed about asking for it.

The christians you mentioned really sound like the absolute worst. I've seen solidarity and actual help carried out by christians, but these guys you've encountered definitely aren't. Holy shit are these people fucked up.

Don't get me started on reddit, it's a shithole. But I agree hexbear is a lot more empathetic on this front and it's a relief to see.

As to the Nazis... I've been always fond of learning about history, but learning about the "medical" experiments carried out on disabled people was the very first time I wanted to stop learning about history. It's easy to believe that the Nazis just killed everyone, but they were a lot more sadistic.

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DisabledAceSocialist [comrade/them] - 10mon

Yeah you're right. I wouldn't much fancy having experiments done on me either. I just long for a quick and peaceful exit in whatever form that comes.

I've never seen solidarity or aid carried out by Christians though, where was that?

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gingerbrat [she/her] - 10mon

Same. But I get it, as much as I wish you wouldn't have to think about it meow-hug

Unfortunately, only very local examples. I've met a few church people over the last few years who were offering help no questions asked (shelter, apartments even, food, medical aid, counseling). Problem was it was only limited to a tiny area around the town I was living in, as there were only two people doing said work.

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DisabledAceSocialist [comrade/them] - 10mon

Most of my experiences with them were on Christianforums.com. All I did was explain my situation and ask how and where I could access food aid, and I got an absolute barrage of abuse from multiple people. Although I did also ask in person at a local church and the priest angrily turned me away too.

The you've got all those famous Christian evangelists who get millions in donations and spend it all on living in luxury instead of helping the poor. Communists/socialists are the only people I've seen actually live what they preach.

Even official agencies who are meant to help, don't. Asking citizens advice and macmillan cancer support for help on accessing food, they just kept referring me to each other. No-one wanted to take responsibility.

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gingerbrat [she/her] - 10mon

That's mostly what I've seen too, and it's infuriating. No acceptance, no kindness, just empty promises and insults at best. I'm still convinced I accidentally stumbled over the only two positive examples of church people in the country tbh.

I'm glad hexbear is helping you out a bit at least. And again, if you need anything, we're here for you <3

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angryhemorrhoid [any] - 10mon

I am in too much pain to think well and make a good comment, but I want to say this is a great comment and it's nice to see someone speak about it. You totally nailed it, all of it. Same with the rest of this subthread. I feel like there is much more I want to say, but I'm unable to right now. (I apologize if this comment is weird. Brain foggy painsomnia brain + cognitive issues in full effect!!!)

I am so sorry you have to deal with so much shit. You deserve better. šŸ«‚

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DisabledAceSocialist [comrade/them] - 10mon

Thank you. We all deserve better. And I am no stranger at all to brain fog, so don't worry about that, your comment isn't weird at all anyway!

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joaomarrom [he/him, comrade/them] - 10mon

I don't know what my brain would be like right now if it were not for my Vyvanse. Jesus fucking Christ this is the third major loss I have in the span of one year. I lost two of my beloved cats and now my grandmother is in critical condition - probably won't make it to Wednesday. Vyvanse has been my real-life Volumetric Shit Compressor.

Fucking entropy, man. Things fall apart. I'm fucking tired of grieving.

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gingerbrat [she/her] - 10mon

cuddle

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Blockocheese [any] - 10mon

Tmj pain ruining my life

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angryhemorrhoid [any] - 10mon

Holy shit, same. That's why I'm here right now, unable to sleep, trying to distract myself. I am so sorry you're experiencing it, too. I hope it eases up on you very soon. šŸ«‚ (I am sorry this comment is not better, or if it's weird or anything; I am having much trouble thinking through the pain)

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Blockocheese [any] - 10mon

I appreciate your comment and hope you get some sleep meow-hug

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un_mask_me [any] - 10mon

HUGS to everyone, this seriously fucked my day up yesterday and I've been thinking about ya'll. We're still here!!!! I've been able to at least see the site on the Jerboa mobile app, but it won't actually log me in to interact. Stay safe and stay strong!

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gingerbrat [she/her] - 10mon

Thank you, and happy cake day! meow-hug

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un_mask_me [any] - 10mon

I didn't even notice, thank you!

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DisabledAceSocialist [comrade/them] - 10mon

This is mental, and infuriating. Because I have trouble with walking, balance and co ordination since having a stroke, I've been having physiotherapy. It hasn't helped at all. Eventually the physios realised it wasn't going to help, and said I should have been referred to the neuro physiotherapists all along. So I spent several years getting inadequate treatment (and this inadequate treatment also started late because of covid) so the damage is done. They finally referred me to the neurophysios, and I've been on that waiting list for about a year. Yesterday I got a letter from them. Paraphrasing, but it basically said:

You've been referred to us. If you still want treatment, call this number within 2 weeks or you'll be removed from our list.

The letter was dated 30th December. Now I don't know if they'll make an exception or if it's too late and I have to be put to the back of the waiting list again. This is what it's like for a stroke patient trying to get basic treatment. And the government wonders why so many people are too disabled to work.

😔

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KnilAdlez [none/use name] - 10mon

RFK Jr is targeting all of my meds apparently. Even my MS meds.

WTF does he have against MS meds?!

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Aradino [they/them, comrade/them] - 10mon

I slept most of the day today. Whoops.

I should get up and do something but I've got nothing to do but couch rot, so I may as well bed rot.

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DisabledAceSocialist [comrade/them] - 10mon

I tried wearing shoes (trainers) for the first time since my foot surgery. It was a very bad idea. it was so painful I had to take them off after 20 minutes, and when I did, my bandages had got soaked through with blood. The trainers must have rubbed the surgical sites open or something. It looks like I won't be able to wear shoes for a while yet. This is so frustrating. I can't do anything like this. I'm supposed to be having another surgery in April and I'm having serious second thoughts about it.

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