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Disabled Community Megathread December 30th — January 5th

Hello disabled comrades! I can't believe we're entering a new year... which is year six of the pandemic, hooray. I'm a firm believer that we must always have revolutionary optimism, but I can't say it hasn't been hard for the past few years as more and more leftists have abandoned COVID precautions. But as disabled people, we keep agitating, we keep organizing, and we keep going. Solidarity in the face of pandemic eugenics, always.

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

DragonBallZinn [he/him, they/them] - 12mon

I’m pretty sure ableism has done more to reduce my quality of life than my autism ever will.

“You lack social skills” - maybe some actual peers could have some patience and not turn their nose up at me when I want to be their friend? Then I can learn how to socialize? Just a thought.

“You’re unemployable” - Then maybe college should be affordable so if something bad happens in one semester my life doesn’t get permanently ruined and I just try next semester? No, stop telling me to start my own business. I will function best under the stability of a 9-5.

I know I’m preaching to the choir; but disability issues are class issues too.

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gingerbrat [she/her] - 12mon

I couldn't agree more, friend, and if nothing else, I hope you at least find peers irl that will treat you with the respect and love you deserve

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DisabledAceSocialist [comrade/them] - 12mon

Does anyone else feel that their illness/disability has left them mentally and emotionally stunted? After years of being unable to work or have a social life, I'm noticing more and more how people the same ag as me seem so much older. I feel like I'm mentally and emotionally stuck at a younger age after missing out on so many milestones and experiences in life.

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hexbee [she/her] - 12mon

yea... (⁠ ⁠ꈨຶ⁠ ⁠˙̫̮⁠ ⁠ꈨຶ⁠ ⁠)

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Belly_Beanis [he/him] - 12mon

I feel like I'm just waiting for my life to reach the ending. A lot of my friends have moved on with life and I don't leave the house much anymore. I haven't been able to work in over a decade.

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DisabledAceSocialist [comrade/them] - 12mon

Same here. I'm just waiting for a chance for assisted suicide, because I've tried once myself before and it ended very badly. Unsuccessful and very painful with lasting effects. I'm hoping to go to dignitas. Of course I can't afford it, but they apparently do discounts or pro bono for people on low incomes. However, you have to be a member of dignitas for this, and it costs a small amount to join. I can't afford the joining fee right now, but maybe if I get my benefits sorted I can. Or perhaps it will become legal in the UK.

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Ivysaur - 12mon

I appreciate you khizuo & everyone else here but holy shit this sites been gettin on me something fierce lately god damn. between the very clear racism, chauvinism, ableism, not sure how much more of this shit I can take aaarrgghh

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khizuo [ze/zir] - 12mon

yeah lea-breakdown it wears down on me too. I'll try to do more to combat it.

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Ivysaur - 12mon

I really just need to do better about logging off. I keep feeling like I’ll miss some news or this or that and so even when I don’t post I’m still lurking. But a lot of people here just suck. It’s draining me to even be around. I need to fill the time I spend scrolling and getting mad at all these people being shitty with something else, but my world is already so, so small. I’ll figure something out.

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khizuo [ze/zir] - 12mon

I've significantly reduced my activity on the site in the past ~2 months or so as the white chauvinism on the site has become more apparent (and also because I'm just fatigued to do a lot of posting.) I don't plan on leaving entirely as I still want to at least make an effort to improve things as one of the evil tankie mods, but it's such an uphill battle.

also relate on the "world being small" thing, i'm in bed 95% of the time thanks to me/cfs and trying to keep myself entertained is challenging. I have projects that I work on but it's rough not being able to get out and about more.

also i'd be happy to hang out outside a hexbear context if you ever feel like it, we can talk on matrix.

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Ivysaur - 12mon

I would be honored, yeah. I’ll hit you up sometime. Be strong ❤️

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hexbee [she/her] - 12mon

one of the evil tankie mods

thank you for your service o7

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Belly_Beanis [he/him] - 12mon

i'm in bed 95% of the time thanks to me/cfs and trying to keep myself entertained is challenging. I have projects that I work on but it's rough not being able to get out and about more.

This is me, too. I have a ginormous backlog/pile of shame I need to draw/paint/sculpt but it's like by the time I get my work station set up, I need to lay down and rest again. The enshittifications caused by capitalism aren't helping, either.

Then I have boomer family I rely on for help (which I appreciate), but who are incapable of being alone with their own thoughts for more than five seconds and require constant attention that breaks my concentration whenever I try to do something. I've babysat toddlers and dogs who required less monitoring. Like no wonder my grandparents hated their kids lmao

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Mousy [she/her, they/them] - 12mon

Yeah the constant debate broisms have made me go back into lurk mode :/

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AshenWolf [she/her] - 12mon

I can feel myself slipping back into lurking as well 😑

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LeylaLove [she/her, love/loves] - 12mon

It's so upsetting. Sometimes I think I'm just too optimistic expecting people here not to be super ableist :/

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khizuo [ze/zir] - 12mon

I’m sorry, I’ve locked the post, I really need to rest and eat. But I’m not done addressing fatphobia on the site I promise, I’m still going to work on this.

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StillNoLeftLeft [none/use name, she/her] - 12mon

Care-Comrade

I am still in awe that the comment that asked the people who are harmed to bring receipts so that they can believe that dieting does not work got over 50 upbears.

I always knew that if this discussion ever happened on this site, it would go exactly the way it went.

I mean you learn to expect disappointment existing in a large body, but the slap in the face never stops stinging.

Ffs, I need to go touch-grass

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AshenWolf [she/her] - 12mon

Thanks for the great work 🫡

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ashinadash [she/her] - 12mon

fidel-salute saw it in the modlog, doing good work

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roux [they/them, xe/xem] - 12mon

What the hell did I miss now?

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khizuo [ze/zir] - 12mon

Someone made a post to bring attention to fatphobia and a bunch of hexbears came out to start concern trolling on it. It got way out of hand and eventually I locked the thread. I'm still feeling quite upset and disappointed with a lot of people on that thread (not the op and not the people who were pushing back on the fatphobia) and I think this is an aspect of site culture that really needs to change.

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roux [they/them, xe/xem] - 12mon

Damn, that's kind of shameful. I'm a little bit glad I missed that.

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khizuo [ze/zir] - 12mon

actually pulling my hair out at the thread on anti-fatness (not at op). god so many hexbears are INSUFFERABLE

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StillNoLeftLeft [none/use name, she/her] - 12mon

Yeah, chiming in that I dare not mention my longcovid or chronic pain issues that I have in there right now, because it would just uphold the issues we are trying to combat.

And noticing this moderation in myself on this supposedly leftist site makes me feel stuff for sure.

But to all comrades who get it, thank you.

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khizuo [ze/zir] - 12mon

im so sorry comrade. i’ll try to be more vigilant and better on this issue going forward.

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StillNoLeftLeft [none/use name, she/her] - 12mon

It isn't on you at all! meow-hug

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ihaveibs [he/him] - 12mon

Does it feel kind of like, edgier lately to anyone else? I feel like I've seen a lot of threads lately just full of some nastiness that I don't want even to engage in

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un_mask_me [any] - 12mon

Yes, that's a good way to put it. It's been difficult to engage or connect because it feels so...false, I guess

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ihaveibs [he/him] - 12mon

Normally, I don't really mind as much if I feel like someone is being (unknowingly) reactionary. Although this is an online shitposting forum at its core, I genuinely do consider most people here as comrades, and calling out comrades to be constructive is fairly easy. But some of the behavior lately has not felt that way. I can't quite put my finger on what it's felt like lately but I can certainly say I have not felt like there have been many constructive discussions lately nor the space to have them.

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blipblip [they/them] - 12mon

Seen a lot more people masking recently, bird flu stuff might be spooking people? Dunno, nice to see people other than me doing it though. Still not even like 1/6 people

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Beetle [hy/hym] - 12mon

I wish the same were true were I live

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Ivysaur - 12mon

genuinely do not know what i expected out of a site with roots in dirtbag left shit. i never interacted with this nonsense a decade ago for this reason. every time i keep hoping things are different and I guess they are a little bit compared to, like, 2014 or whatever but it's just not worth the effort anymore

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Kuori [she/her] - 12mon

it's the people like you that make this place bearable (no apologies). i will never blame you or anyone for leaving but i hope you know that there are people in your corner and they would rather lose a thousand debatebro assholes over even a single one of you

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gingerbrat [she/her] - 12mon

Ivy, you're the first person here to take my complaints seriously and didn't just reply with a bs "stiff upper lip" comment. That means so much more than any struggle session ever could. I've come out of lurking too over the recent weeks (got a new account as well for a "fresh start") and would hate to see the people leave who made me feel brave enough to talk to the others here.

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PurrLure [she/her] - 12mon

I guess I didn't get fired??? I'm just logging in as usual, and I haven't received any dire emails.

Ok. Good. Still have no idea why my badge didn't work, but worst case scenario if none of my coworkers can let me in again I'll just WFH New Years Eve. It's not my problem at that point.

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Imnecomrade [none/use name] - 12mon

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PurrLure [she/her] - 12mon

They just like me fr makima-huh

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Ivysaur - 12mon

@gingerbrat@hexbear.net & @Kuori@hexbear.net, your comments really moved me. It’s all just internet posting but unlike some people I am acutely aware that every letter we see on screen is made by other human beings, ones we can name and recognize, who can name and recognize us. It’s nice to be reminded. Thank you.

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gingerbrat [she/her] - 12mon

meow-hug

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Kuori [she/her] - 12mon

stalin-heart any time, comrade

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Mousy [she/her, they/them] - 12mon

Tired of constantly being treated as a nuisance / doormat by "friends" doggirl-cry

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Kuori [she/her] - 12mon

you deserve better friends. i hope you find some soon.

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un_mask_me [any] - 12mon

Hugs from an internet stranger if wanted

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Mousy [she/her, they/them] - 12mon

Thank you meow-hug

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AshenWolf [she/her] - 12mon

I've already been extremely exhausted lately, and now I've been hit with COVID, because despite my efforts, most of those around me do not put in any effort at all 😖.

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hexbee [she/her] - 12mon

I feel ya, that sucks :( Make sure to rest up ♡

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AshenWolf [she/her] - 12mon

I'll make sure I rest :meow-hug:

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un_mask_me [any] - 12mon

Wishing you a speedy recovery comrade

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AshenWolf [she/her] - 12mon

Thank you meow-hug

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hyrax [pup/pup's, mirror/your pronouns] - 12mon

AWA AWAAAAAAAA!!!! :3 🎉🎊✨🎇🎆

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Mousy [she/her, they/them] - 12mon

And a happy awawa to you too cat-trans

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ashinadash [she/her] - 12mon

Look at that lil face cat-trans

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ashinadash [she/her] - 12mon

::: spoiler just whining again, chronic pain/fatigue I am not looking forward to the eventual point when I can't stand up anymore, but it's coming someday. I can feel it, getting up even one flight of stairs is exhausting now. I used to skip the elevator at work by speedrunning all ten flights and boy do I miss that now! My sternum just hurts all the fucking time, when I do almost anything that requires even a little upper body exertion. It has NOT got much better since I vomited a week ago.

Also my wrists/thumbs are too sore from playing a lot of Dragon Quest! I asked my doc about wrist splints a while ago and he said I could buy some lmao. :::

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imogen_underscore [it/its, she/her] - 12mon

meow-hug

::: spoiler commiserating, my own venting


solidarity comrade. right there with you, been reflecting on this too. I'm like, I'm deteriorating. if I don't manage to figure out and build the habit of some kinda light exercise/stretching routine that actually slows or offsets this process, I'm gonna be more or less bedridden before very long. and like, it's a coin flip whether that will even help. I'm very sedentary so i feel pushing for a bit more activity probs can't hurt in my case. but it's really fucking hard when I'm depressed and burnt out (and SORE) all the time. still feeling somewhat inspired recently to go for it this year so I'm hoping to achieve at least some change. some days it feels like such an uphill battle tho. :::

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ashinadash [she/her] - 12mon

meow-hug

::: spoiler same Ah fuck you remind me I've gotta be lifting again, but stretching kinda hurts at this point. Blegh...

I dunno if physical activity will help much but gotta try, I guess. It does feel like an uphill battle, shit fuckin sucks... I hope not to be bedridden... :::

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imogen_underscore [it/its, she/her] - 12mon

yeah I'm hoping to start lifting again this year, used to love it when i was younger so hoping it won't be too intimidating to go back. figure it's worth a try. i get the stretching horts, i think we suffer from similar sternum pain... i wish you a less body hurting 2025 and hope you can find activities or accommodations that meaningfully help you meow-hug

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ashinadash [she/her] - 12mon

i think we suffer from similar sternum pain...

Wait really? This is news to me, rad. I remember you talking about costochondritis, but of the sternum! We should trade tips about how not to cause ourselves excruciating pain or smth.

Also yea ur comments inspired me to do a daily lift again today, just now. It kind of sucks but I think I can build muscle mass and it'll help a bit, exercise feels good at least, runner's high kinda thing.

I hope lifting helps when you get back to it too doggirl-hi

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Blockocheese [any] - 12mon

Went on another walk today and the weather was perfect. Slightly chilly so I wasn't sweating but not too cold that I was shivering meow-melt

I go when there's like no one out and cross the street if I see someone walking near me so I don't mask (my adoptive parents are very anti vax and mask and I'm afraid of them seeing me with one on and kicking me out) but I still get nervous :/ unfortunately it's that or not walking which helps my circulation so :/

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Aradina [They/Them] - 12mon

Rough holiday period for me. I'm struggling a lot, but I know I can get through it. Love you all comrades, here's to a better 2025.

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Kuori [she/her] - 12mon

meow-hug hoping 2025 is your year!

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Aradina [They/Them] - 12mon

💙 Thanks

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Blockocheese [any] - 12mon

Here's a life hack for anyone currently suffering from a chronic pain flareup: your body can actually make you experience menstrual cramps a week before you even get your period, and then for the entirety of your period, making you want to die

big-cool

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Beetle [hy/hym] - 11mon

Thanks for the life hack! Also hope you’re okay 🫂. Menstrual cramps are no joke.

I usually have to lay in bed with curtains closed and lights off waiting for hours while crying until the pain meds kick in because any kind of overstimulation makes me throw up. I can’t believe we have to live through that.

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Blockocheese [any] - 11mon

Thank you, comrade cuddle

I have what I think is MCAS and can't take any pains meds cuz they have some form of corn and i immediately throw them up or shit myself after taking them kitty-cri-screm

Can smoke weed and use my heating pad though big-cool

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Beetle [hy/hym] - 11mon

Oof that’s awful :(

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Eevoltic [she/her] - 12mon

Wow, it's almost 2025 now.

Also I didn't mean for this to turn into a vent, I just started adding context and I kept writing :(

I feel like my health hasn't improved by much over last year, but it certainly hasn't got any worse which I'm grateful for. I think I spent the better parts of 2023 and 2024 going through autistic burnout and it was very debilitating. I had a few brief moments of functioning, but most of it was overshadowed by the inability to do anything I could normally do. The burnout is almost certainly attributed to what I was exposed to in the two years prior to 2024.

::: spoiler cw: mentions of medical malpractice, mentions of ED, mild vent


In 2022, I was coerced into attending weekly sessions to see mental health "professionals" in an outpatient setting to be given free mental health treatment and diagnoses. The diagnoses were important as it allowed me to get treated for my ADHD as well as successfully apply for disability. The weekly sessions with dismissive psychiatrists and gaslighting psychologists completely shattered my will and evaporated my already near-depleted self-confidence.

I was diagnosed with conditions and was not only not informed of, but also not treated for. I found out about these conditions (substance abuse and eating disorder) via a Freedom Of Information request I had sent in relation to a misogynistic psychiatrist. When questioned, my treating team told me that it was out of fear for their and my safety that I wasn't told about this. There was no consideration to the fact I was underweight due to my financial situation, but rather that it was something wrong with me that they also refused to treat. They just used the diagnoses to withhold my ADHD treatment and force me to do annoying tests (weight tracking, blood pressure) every week.

There were many other problems such as queerphobia, ableism, mismanagement of medications, lying on my medical file, calling my abusive non-contact mother, among other things.... I won't dwell on them here.

I ended up ghosting them halfway through 2023 after I had everything I needed from them—disability payments, adequate enough diagnoses, ADHD treatment—although the damage had been done. I had lost so much of my functioning and was in a worse position than I was before I started "treatment".

Afterwards, I had written a 7000 word essay as my third of fourth complaint with proper medical citations and clear concessions. It outlined exactly what happened and what I would like to happen, and it was meet with "we can't do anything" and "we would like to say we are sorry that you felt mistreated".

That. Completely. Crushed. Me.


:::

This year after complaining for two years, I did manage to correct some things on my medical record which might make it slightly less dangerous if I were to be hospitalised. The process was arduous, and I had to do all the research on how to do this myself, but I managed to do it during an intense episode of hyperfocus. I felt so vindicated when I had achieved what that medical institution said was impossible and couldn't be done. If anyone needs tips on how to alter medical records in Victoria, I'm happy to give a few tips privately over matrix.

I'm still sure I have medical PTSD and I still cannot trust therapists now. It's been quite hard to work on that, but I did find a neurodivergent counselor that I've found to be pretty based. Slow progress, but at least it's not getting worse.

I managed to make two friends online this year which is two more than last year I guess. It's the only positive thing to come from moderating a vegan community on lemmy, I end up being forced to talk to people by asking for help modding haha. Socialising is still hard as I'm trying to get used to it again, but I'm feeling positive about it for this new year; after all, I did double how many friends I have :)

The main issue I see that I need to tackle is getting treated for bipolar. It was skipped over when I was receiving forced treatment and I was dismissed whenever I bought it up, but my current counselor and I are working through the symptoms and it seems like I have it and I definitely need to get medical treatment.

I hope everyone is able to stay safe and know that you are loved!

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ashinadash [she/her] - 12mon

Goodposting: I lifted yesterday! I am gonna do it again today! I think it helps so this rules!

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Kuori [she/her] - 12mon

fuck yeah we got a fuckin' champ ovah here! tony-cheer

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heatenconsumerist [he/him] - 11mon

kitty-cri

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Blockocheese [any] - 11mon

meow-hug

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LeylaLove [she/her, love/loves] - 12mon

I've always had arthritis, but breaking a few fingers earlier this month has set back my quality of life so much. Everything hurts to do, and it discourages me from doing so much I need to do. I use my fingers all day at work as a prep cook and I'm really dreading work tomorrow

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Ivysaur - 12mon

Having things happen to my fingers is one of my worst nightmares, I hope you are managing ok. I have terrible RSI from decades of computer jobs but totally missing the use of even some of my fingers sounds awful too.

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RaisedFistJoker [she/her] - 12mon

trying to pre study for my final semester of uni to take off some of the cognitive load of the semester since i just can't work as much as the course demands and im being reminded of how difficult it is get stuff done catgirl-flop

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ashinadash [she/her] - 11mon

Update: lifting is pretty exhausting but I do think it helps. I'm doing the fucking ✨ Laundry ✨ today, even! It would be rad if you could just gymrat yourself out of chronic pain, we'll see. I can still walk around and do stuff for now, though.

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Beetle [hy/hym] - 11mon

Was gonna do some cleaning but I’m stuck on the couch now with only like 10% done. At least the mold on my window is gone

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Ivysaur - 12mon

is someone calling it “the rona” kind of a yellow flag for anyone else or just me lol

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gingerbrat [she/her] - 12mon

Depends. If in a serious conversation, definitely weird. But if I'm talking to someone who loves to disregard the danger, I like to say it actually bc they get so worked up over being reminded that it isn't over. So yeah, for trolling I use it myself.

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TheSpectreOfGay [hy/hym, she/her] - 11mon

i was doing such a good job combating my demand avoidance and now something broke that needs to be addressed immediately and im so stressed and feel myself regressing to ignoring everything else boohoo

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Blockocheese [any] - 11mon

My left hand keeps tingling, most likely from poor circulation agony-shivering

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